A Different Strategy

Today the doctor at the NICU decided to put Lily on an on-demand feeding schedule. Basically, they wait until she wakes up hungry and then just give her what she will take without tube-feeding the rest to her. It seems that she did much better on this schedule. We also got the results that Lily does indeed have Trisomy-21 (Down Syndrome). Kim also happened to speak with a nurse who's god-daughter has Down Syndrome and she said that she is now 22 and graduating from High School. Right now we are hopeful that she will come home sometime in the near future. We also have a meeting with a doctor at the hospital on Tuesday afternoon.