Sisters

Photos taken just this morning of Gwynny and Lily playing underneath Lily's little gym. Entire set here.

Lily's Homecoming Photos

Photos of Liliana when she was discharged from the PICU. Click on the image for the entire set.

Life At Home

It's been about a week since Lily has come home and, altough it has been challenging, it is nice to be home. Lily is still having some feeding issues and she gags on her meds sometimes and we are still battling Gwynny's MRSA. Still, it is nice to be home and not have to travel back and forth to the Clinic every day. Now, if we can just get this MRSA permenantly out of our house, we will both be a bit more at ease.

Lily Is Home

Finally, after a 105 day hospital stay that was only supposed to last 7-10 days, Lily is home and doing well. She even slept through the night. Gwyneth is another story. She continues to struggle with this MRSA infection. She has been on antibiotics for several days and is scheduled to see the doctor again on Friday. It must be painful for her since she is always complaining about her bottom. Car rides are no fun either with her screaming for most of the ride. If we can just get Gwyneth healthy, we can resume some state of normalcy in our life.

Postponed Until Monday

It seems that because Gwyneth is sick, they are postponing Lily's discharge until Monday. I took Gwynny to the doctor today because of her incessant coughing and she even got a chest x-ray. The doctor put her on an antibiotic just to be safe and her x-ray turned out to be fine. I'm sure she picked up something from being at the baby sitter the past month.

So, I guess we have one more weekend in the Clinic. I just hope that Lily doesn't pick something else up down there in the time being.

Lily Scheduled for Friday Discharge!

It's been over 3 month at the Cleveland Clinic but Lily is FINALLY scheduled to come home Friday afternoon. They have her back on her old feeding schedule and she has been off her oxygen since Monday. We thought that she'd have to come home with O2 and they even had it all set to come home but she was weened off of it that day and the day nurse didn't even realize it. Lily will come home on about a dozen meds with a crazy schedule for administering them but at least we can be in our own house.

This week has been a bit crazy. I have not gotten a great night's sleep since the weekend and Gwyneth is coughing and feverish again. Thankfully, this chapter of our life is about to be over.

Home by Valentine's Day?

When we first came in on 11/4/08 for what was to be a 7-10 day hospital stay, we were confident that we'd be home for Thanksgiving. Things didn't go as planned and we hoped that we'd at least be home before Christmas. Three surgeries later, we were hoping to be home just after the New Year. Well, it's looking hopeful that we will be home FINALLY for Valentine's Day.

They are going to try larger more infrequent feeds with Lily soon as opposed to continuous feeds. Either way, Lily is now on NG tube feeding and she should be home fairly soon.

I can't wait until I can resume my 2.5 mile commute from the office to the house after work.