It's been over 3 month at the Cleveland Clinic but Lily is FINALLY scheduled to come home Friday afternoon. They have her back on her old feeding schedule and she has been off her oxygen since Monday. We thought that she'd have to come home with O2 and they even had it all set to come home but she was weened off of it that day and the day nurse didn't even realize it. Lily will come home on about a dozen meds with a crazy schedule for administering them but at least we can be in our own house.
This week has been a bit crazy. I have not gotten a great night's sleep since the weekend and Gwyneth is coughing and feverish again. Thankfully, this chapter of our life is about to be over.
1 comment:
Praise the Lord!
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