Kim and I took Lily to the Cleveland Clinic main campus on Friday for an appointment with the pediatric cardiologist there. The doctor we were seeing at Fairview Hospital (Cleveland Clinic hospital) wanted us to start seeing the doctors at the main campus as the time for her heart surgery gets closer. While we were there, we also spoke with the doctor who will be Lily's surgeon. Both of these doctors are extremely nice and explained everything in great detail. The surgeon reassured us that Lily's defect is quite common and something that he has dealt with many times before. In fact, he said that only 2 infants have died since he has been working at the Clinic both of which were weeks old with massive problems.
It seems that kids with Lily's heart defect actually have stronger hearts than normal and this is why they can have an issue with gaining weight since the heart consumes all of the calories. She was put on another medication to help her heart beat a bit stronger in the hopes that she will gain some more weight before the surgery. As it stands, it looks like she will be having the surgery after she is 3 months old but before the viral season starts. Everyone is reassuring us that we will have a new kid after the surgery. Right now her feedings are quite frustrating since she does not want to eat.
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