Lily had all of her tests conducted yesterday at the Cleveland Clinic. Her GI system is normal and she is having some issues with swallowing. Kim and I suspected the swallowing issues but her normal digestive tract is welcome news. She has already gained about 8 oz. from being in the hospital only one day! The doctor's are only allowing her to drink from the bottle for about 15 minutes and the rest is tube fed. She also gets 20cc of formula per hour dispensed through her NG tube for 10 hours while she sleeps.
Lily should be discharged in 3 to 5 days at which time she will come home with the NG tube in place. Kim and I will be trained on how to care for Lily and place the tube and Kim will start her FMLA at that time. We are both hoping that Lily gains weight quickly so that she can get her heart repaired soon and be on the road to recovery.
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