Lily has had a spiking temperature for days now. Her breathing has also become much more labored since she has come off one of her heart medications. Yesterday, when she was sitting in Daddy's lap, her main line in her corroded artery pulled out when she twisted her head causing a slight panic with blood all over. Luckily, she had been given a unit of blood earlier in the day and these things always look worse than they are.
Today, they decided to take her back in for a short procedure to put another line back in her arm to put her back on one of the heart medications. Unfortunately, this also meant sedation and she was put back on the ventilator. At this time, it is a waiting game to see if her breathing improves from the medication or if that and her temperature is a result of some yet to be detected infection. One other contributing factor would be her leaky heart valve and the worst case scenario would be a valve replacement surgery. That would be a last resort and they would exhaust all other options before discussing surgery.
Needless to say, this is rather stressful and shocking considering how well she had been doing up until this point.
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