Lily was finally transferred out of the PICU and moved to the step-down unit! It has been a long time coming since she had her first surgery on election day (11/4/08). The last bit of IV medicine was removed this morning and all of her medications are oral. The cardiologist that was working this morning said that it is highly likely that she will need the mitral valve replaced at some future time in her life. The replacement valves that they make are much too large for infants and that they will do everything they can to manage her with medications at this point on.
She still has not been fed orally since one day in the PICU and all of her feeds are NG. That will be the next thing that they work on so that our little Peanut can finally come back home and we can return to a normal life.
Happy Thanksgiving to all.
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