We got a phone call at 2:30 am this morning that Liliana had an episode where her heart rate dropped and her oxygen levels dropped as well. According the the staff, Lily's lips turned blue and they had to give her chest compressions but she was alert at the time and crying. She was immediately taken to the PICU and put back on the ventilator and IV lines were put in. The past day she was having trouble with her feeds. She would cry, cough and throw up even though the feeds were done through her NG tube. The GI team took a look at here and changed her reflux medicine from Pepcid to Previcid.
When Lily first made it to the ICU and was put on the ventilator, her lungs were not responding well at all but she stabilized and is now doing relatively well. The doctor that was on duty suspects that she may have aspirational pneumonia after looking at the x-rays but they have not ruled out complications due to her leaking mitral valve. The pneumonia could be from a feed that accidentally went in her lungs. We had been hoping that Lily would come home this weekend but now we are not even sure if she'll make it home before Christmas.
We've already been here 4 weeks as of today and Kim and I are both incredibly stressed to say the least.
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