Lily has now been hospitalized for a bit over a month for her heart repair. The doctors have told us that this is not a normal case and they are doing everything they can to try and get her home as soon as possible. She seems to be recovering from her pneumonia and cultures have indicated that she does have an infection. They have scheduled a heart catheterization for her Monday so they can get a better look at just what is going on with her heart. There are several things that they will try before considering a third surgery but will have to consider all possibilities so that she can come home.
Kim spends most of her days with Lily. I work and then meet her at the hospital in the evening. Gwyneth spends her days with Grandma and Grandpa and stays with us on the weekends. We both cannot wait to have our lives and our family back.
Below is a very short video of Lily in the PICU.
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